Showing posts with label dying. Show all posts
Showing posts with label dying. Show all posts

Sunday, March 29, 2020

SOL20 Slice #29: Dread



I am participating in the
 Slice of Life Story Challenge (SOL20).  
All participants are sharing stories about moments in their lives, writing 
 every day for the month of March 2020.
Thank you, Two Writing Teachers!



Laying on my bunk in the cabin, I was wide awake and terrified. Every detail of the ghost story that the older girls had shared around the campfire earlier in the evening was now omnipresent in my mind. Every exaggerated, imaginative depiction that I had laughed at earlier, sitting next to peers, now seemed very plausible and real, alone, in the dark of night. I listened to my roommates' uneven breathing. One girl had a cold, and her breaths would catch and then rattle, unpredictably, intermittently. My image was of this big, thick, dark green, slimy, amorphous monster that came out in the middle of moonless nights, just like this night. It would quietly creep, almost flow, across the surroundings. It would pass under the thin opening at the base of a door, and spread out into our cabins, and across our bodies. It was a green so dark that it was impossible to see without moon and stars to provide a light. Sometimes it suffocated you. Sometimes it just passed over you, leaving a deep green stain across your face. In my bunk that night, I knew the wind through the branches of the trees was IT, coming. That cracking noise...IT! Was it near?  Perhaps it had just bumped into something...maybe that was just the sound of its weight, as it slithered along. Was it repelled by light? If you had a flashlight, could you ward it off? Why didn't I ask this before? I pulled the thin cover up over my head and just waited, paralyzed, impotent, helpless. At some point, exhausted, I fell asleep.

Honestly, I believe this is my only take-away from my brief stint in the Girl Scouts. I have long heard many more honorable things about this organization, but I only remember that night-time dread, while participating in a one night sleepaway camp in the woods. 

Even though some fifty years have gone by, I can still conjure up that creepy monster; I am all too familiar with that ominous dread.

It's back.

We just got word that COVID-19 has made its way into the nursing homes of two folks we love. One, up in Maine, my Dad (age 90) - a fellow resident was suspected to have the disease several days ago, and was immediately isolated, and the test just came back positive; every resident in the home is now isolated in their own rooms. Two, my sister-in-law's mother (age 93) -  her roommate was diagnosed with the disease, here in Maryland; the beloved caregiver was sent home on a two-week quarantine; the mother is now isolated in her own room, showing no signs of having the infection.

No visitors are allowed in. No family members are allowed to visit. 

Doctors and staff are present.

Until they get sick or exposed.

I wonder if nursing homes are kind of making it up as they go? Do they feel paralyzed and impotent, just lying in wait for this disease? I know I do.

My sister-in-law was able to sneak over to the outside of her mother's first-floor room and hang paper hearts all over this exterior window  - "I love you, Mom." She says her Mom gave her a big smile and a wave. 

Dad's on the second floor of a complex, making this loving action near impossible. I smile at the thought of "doing a John Cusack" (in Say Anything) and bringing a boom box underneath his window, blasting his favorite songs. Dad would want to hear Willie Nelson and Jim Croce. 

I am filled with dread. I think dread necessarily involves a lack of knowledge, an eerie prediction, some fatalism, but always - YOU. DO. NOT. KNOW. IF. IT. WILL. HAPPEN.

I laughed with delight, in fact, at this clip from CNN on this past Friday (March 27, 2020):

Meanwhile, a 101-year-old man was released from hospital after recovering from the coronavirus, Gloria Lisi, the deputy mayor of the Italian city of Rimini, has said.
The man, who has been named only as "Mr. P," was admitted to hospital in Rimini, northeast Italy, last week after testing positive for Covid-19 and left the hospital on Thursday.
Lisi said his "truly extraordinary" recovery gave "hope for the future."


As I write into this sense of dread that is growing in me, I must say - I'm not surprised or afraid that Dad will die. I mean, seriously, he is 90. I think if I were to speak about 'fears of dying of this virus' they would center around losing younger, healthier family members and friends. My Dad has had a long, full life. My dread is about how this plays out in real life - this deeply sad image of dying alone. No matter your age. The effect of having this virus, of being in proximity to someone with the virus, means that you will be acutely isolated. You will suffer alone. All by yourself.

Yes, that's it: I find that I am perseverating on the image of these two much-loved people being so alone right now. So alone. 

What gives them peace while they are hunkered down and waiting it out? I hope my Dad is lost somewhere on memory lane, remembering all those times when he felt strong and happy, thinking about silly antics of the past. Maybe he's even well-trained for this time of isolation, having spent so much time on submarines, away from all the physical space and pleasures of our world.

It helps to think he's laughing.


Tuesday, April 9, 2019

SOL: Parkinson's



I am participating in the
 Slice of Life.  
All participants are writing about one moment, one part of their day, 
on Tuesdays.

A big thank you to Two Writing Teachers for providing this unique opportunity
for teacher-writers to share and reflect!!



Seeing my Dad this past weekend was, once again, really hard. He is 89 and lives in a nursing home in Maine. He suffers from Parkinson's, and his decline continues with abandon.

I think about how I work with preschoolers to accomplish some small skill - say, printing the letters of their name, or zippering up their coat, or cleaning up their toys. Often, with practice, I see marked improvement very quickly, as they work on these skills. For Dad, with Parkinson's, his daily work is the mirror opposite - not skill-building, but trying to delay skill-disappearing. He works very, very hard to not regress in his skills. He wants to hold on to that which he can do - and, honestly, these past few months, it seems to be to no avail. Over time - over much too short time - he is losing his ability to do absolutely everything. As hard as it is for me, his child, to watch this, I know it has to be eviscerating for him to live it out.

An example:
Just three weeks ago, he needed my help a little bit to get out of his bed or chair, and then he walked with a walker. Today, I cannot coach him by myself; I need the assistance of a caregiver to get him up. I watched/assisted as she gave him step-by-step directions - "hold this," "reach here," "step here." It was clear to me that Dad could not follow her slow and clear words. Also, just three weeks from when I last saw him, he is no longer able to walk with a walker and now uses a wheelchair. Together, the caregiver and I lifted and moved him into the wheelchair, with little or no help from Dad, little or no ability from Dad. This decline is stunning.

My brother has done a lot of reading about Parkinson's (I probably should, as well!) and he says that the progression of this disease is uneven. Although there are specific stages of decline, these are achieved in irregular patterns - sometimes moving slowly and other times deteriorating very quickly. There is rarely any "bounce back," but a progression towards immobility. Since Mom's death in October, Dad's decline is like an elevator, dropping down rapidly. Grief coupled with Parkinson's, that's how I describe his condition.

This poem is my reflection on this new chapter in Dad's/my life.


How can it be that
yesterday he could,
today he can't?

Sliding
      down a slippery slope,
                      surrendering to
                                         silence.
                                             

How can it be that
yesterday he could,
today he can't?

Moving backwards
mind muddled,                           
 a mask of oneself,                                           
miserable.                                                                


How can it be that
yesterday he could,
today he can't?

Forgetting,
 falling,
 frail,
   forever gone.

Parkinson's
means
progressive
powerlessness.