Showing posts with label elderly father. Show all posts
Showing posts with label elderly father. Show all posts

Tuesday, August 11, 2020

I do not fully understand



I am participating in the
 Slice of Life.  
All participants are writing about one moment, one part of their day, 
on Tuesdays.
                                                        Thank you, Two Writing Teachers!


The digital clock blinked "3:34 am," and I got up and shuffled to the bathroom in the dark...my usual, perfunctory, middle of the night ritual. A moment or two later, task completed, I stepped out of the bathroom, and immediately paused at surprise noise - I heard music, a joyful celebration of some sort, from the back of the house, our family room. What?! There is no one home these days except Tony and I, and Tony was asleep in our bed. How to describe the sound I heard...it was brief, muted, happy...a chorus of some sort, welcoming, exuberant, delighted. I leaned around the corner to peek, to see what was going on - honestly, I was not in the least bit fearful, only curious, even, perhaps, cheerfully expectant - only to find nothing there, nothing visible, and no more sound.

I went back to bed and lay down next to Tony, in the dark, smiling to myself at my overactive imagination. Certainly, there was no one else in the house, there was no one partying. Perhaps it was a neighbor, remnants of some late night festivities? I knew whatever the noise had been, it was okay. I lay there thinking about my Dad, and I was overcome with this feeling of serenity...a sense of softness, acceptance, celebration, connection, and love for him, as he journeys towards his death. 

I've been searching for serenity these past few weeks, battling anxiety, feeling increasingly stressed and depressed about my Dad, who is under hospice care at age 91, some 500 miles away from me, living out his days in a nursing home that is on lockdown with COVID. There is no possibility of in-person visits from family or loved ones. Yes, I've been quite blue. Yet, here in the dark of night, something almost magical had transcended into the air, bringing song and cheer, and I felt calm and peaceful. I do not fully understand.

Maybe it was that good long walk I had taken? 

Yesterday, I took a long, quiet walk in an effort to relax my mind. As I was finishing up my trek, I had the strangest sense that someone was coming up behind me, right on my heels, on my left side. I was on a spacious part of the path; it made no sense that anyone would feel the need to come right up behind me like that. I looked behind me, puzzled, and, yes, you guessed it, there was no one there. Strange! It felt like someone was there, shadowing me. The sensation reminded me of my Mom, in her last years, as she suffered from acute dementia...when I would visit, she would hang very close to me. If I walked down the hall, for example, she would 'toddle' up right behind me, following me as closely as she could, tagging along, like a child. 

I lay in bed, thinking, when a whisper of radiant light trickled through the curtains at the front of my bedroom - much like the music I thought I had heard, the light was soft, embracing, and brief. My window. Light in, around, through the curtains, a kiss of light, and it passed. I lay there in absolute awe and respect. I admit to having a smidgeon of fear - I reached over to my husband, placing my hand on his thigh, to anchor myself. What was happening? The light was not some car passing by on the street, certainly not a flashlight or searchlight...it was much softer than these...diffused, yet clear and hopeful. Too solid for fireflies...certainly not anything I could identify. I do not fully understand.

This light, this song, this dark night - my little spot of courage and love. This thing called life, what a mystery, how it weaves in and out of us, through and around. We are, we live, we die, we bring our whole selves into it all. There he is, my fiercely protective, strong, determined Dad, solving the greatest problem of his existence, and he is stumped by it, trying his best to die on his terms, to finish without hoopla and fanfare, desiring to be independent, resilient. He is stuck in the earthly confines of his Parkinson's, in this home with caregivers, dependent on their helping hands, thoughts, and care, he must submit, he must rely on others...I know this is so hard for him, as it is for me, all my siblings, too...we are not in control, we never have been. 

Tony woke up, responding to the touch of my hand on him. I told him about the music and the light, the mystery of this night. He shared my sense that I had been visited, yes, visited, by something much bigger than me. I had this pervasive sense of being fully connected to and with my Dad at this time, across all these miles...this sense of certainty, really, that it doesn't matter one whit that I am not physically with him right now, I am with him always, and he is with me always.

Realizing I was wide awake and there was no drifting back to sleep, I got up and moved into the living room, to write about this experience, to capture the details while they were fresh in my mind (everything you have just read!).  

Little did I know, the night's mystery was not yet complete. 

Into my journal I wrote:

At a minimum, I believe I am getting a beautiful message of peace, acceptance, serenity, from Dad, from the surrounds, from the larger universe, this holy spirit - I am loved, I will always be loved, I will always know this loving, my loving is felt by Dad, he sends and embraces me with his, all is well, there is no separation, no distance, there just is, there just is not.

No sooner had I written these thoughts down when there was, once again,  a sense of radiant light, enveloping me, this time over my left shoulder. I have a lamp on my right side; there is no lamp or window on my left side, only a bookcase...with a wave of soft, embracing light. 

I go still.

Pause.

What is this?

The light passes. 

I make the connection: this light, over my left shoulder, my Mom.

Mom, behind me on my walk, Mom supporting me during the night, letting me know, everything is well, everything is good, giving me strength. 


With that, I felt clarity and peace. I went back to bed, back to sleep; there were no more mysterious surprises. 

Something transpired that I do not fully understand, that led me to this very peaceful place. 

Dad is dying.
I am not there with him, and yet I am so present.
Attuned. Aware. Alongside.

This sense of eternal belonging, eternal connection,
we are one.

Insight from the dark, all will be well.



Tuesday, May 12, 2020

Zooming through



I am participating in the
 Slice of Life.  
All participants are writing about one moment, one part of their day, 
on Tuesdays.
Thank you, Two Writing Teachers!




"Maureen, would you go and get me a cranberry cocktail?," my father asked me. Cranberry 'cocktail' is non-alcoholic and a nursing home favorite - half cranberry juice and half ginger ale; at age 90, he's earned the right to drink as many of these as he wants.

The only problem was, I was on a video call with him when he asked for one! 

Dad is isolated in a nursing home in Maine, and I am sheltering-in-place in Maryland. It is really hard not to be able to visit him, and each passing week of this pandemic makes me a little more depressed, as I think, realistically, will I see him again? How will it ever feel 'safe' enough to enter his nursing home, before a vaccine is made? Will it ever feel fair to his caregivers and their families, to have visitors entering the facility on a regular basis? How long will it take to make a vaccine? 

About three weeks ago, the Activities Director at Dad's home arranged for families to make video calls to their loved ones. What a blessing this has been! Although it had been many weeks since I had seen him, that first video chat revealed my Dad in much the condition as he was when I saw him last: sleepy, his face set in a frown (always!), yet good color, healthy, clean, and relaxed. 

Dad has some vision impairment, he's hard of hearing, plus he has a little dementia (as a result of Parkinson's). He can be very confused about some things (for example, he often talks about my Mom as if she is still alive). I wondered how successful video calls would be, against these odds, but, honestly, they are a very good way to connect. When he asked me to get him a cranberry cocktail, I realized he was mistaking my image for the real thing - how great is that? The Activities Director immediately said, "I'll go get you that drink; we'll let you talk to your daughter. You don't get to see her much!" I loved how he took Dad's request seriously and in stride. 

The Activities Director is quick to make technical adjustments with each call - when Dad had trouble hearing, he got head phones; when Dad rejected these, he connected speakers to the tablet. The speakers are phenomenal, giving such great sound, and making him think I am right there with him.




One call, Dad asked me very seriously: 
"What's your evaluation of Mom?"

He had slipped back in time. 

Background story - Mom suffered from mental illness and Dad spent years asking me this same question, as if to get reassurance that she was doing well. Often, I think, he was seeking a 'pat on the back' because she always refused any and all medical help; Dad didn't fight her about this, and simply took care of her himself. If I responded, "she seems great," then I was effectively saying he was doing well by her.

Mom died a year and a half ago, so "What's your evaluation of Mom?" is a very odd question these days.

I responded gently, "I think she's calm. I think she's missing you."

He nodded his head, resignedly...perhaps, understanding.

Then I said, "What's your evaluation of you?"

He said, "What?"

I repeated the question.

He said, "I'm sad." 

Ah, isn't that the truth? Aren't we all? Isn't this hard? How are we supposed to feel anything other than sad these days?

I decided to be silly and give him a taste of his own medicine - 

"Well then, my Dad always says, you have to stand on your head and turn your frown upside down." 

This made him chuckle. 
Which I call a win.


Just like I do with my preschoolers, I have to take Dad exactly as he is, in whatever mood I find him. The Activities Director does a great job "transitioning" Dad to the call, getting him ready a few minutes beforehand, trying to get him excited and alert. It doesn't always work out. Our last video chat, he had absolutely zero interest in talking to me. He looked off to the side, not acknowledging my voice at all; I asked question after question, trying to joke with him, compliment him, using up pretty much everything in my "bag of tricks." Then I said, "Gee, Dad, you are really making me 'up' my entertainment game, today; I guess you really aren't in the mood to talk." Dad turned his face right to the screen and said, "Would you allow me to go downstairs and get a cup of coffee? Bye, Maureen."

Ha! 

That's called, 'being shown the door.'


Every call brings an anecdote, some surprising little nugget, a shared moment together. I am truly thankful to have the ability to video chat. 

It is so good to see him.


Tony and I "zooming" with Dad.




Saturday, March 16, 2019

SOL 19 Slice #16 What am I doing



I am participating in the
 Slice of Life Story Challenge (SOL19)
All participants are writing about one moment, one part of their day, every day for the month of March 2019.

A big thank you to Two Writing Teachers for providing this unique opportunity
for teacher-writers to share and reflect.



Somehow
I am undoing,
totally undoing,
all my healthy living intentions
by unrestrained
indulgences,
snacks, chocolate, and wine,
here in Saco,
visiting my elderly father.
Unfettered, I am.
Unquiet.
Unable.
Briefly,
so briefly,
these
blunt,
soothe,
temper.
Food and drink as anesthetic.
Not good.

I will amend my ways when I return home tomorrow.